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Down’s Syndrome Scotland is the only charity in Scotland dedicated solely to supporting people with Down’s syndrome (Ds) and their families and carers. Our vision is that society fully accepts and includes people with Ds. We support families and people with Ds to reach their fullest potential by providing a range of services, influencing public policy and by changing attitudes.

There are an estimated 3,500 people with Ds in Scotland and over 1,500 families are currently known to our charity. We provide direct support to families on the physical, mental and emotional aspects of caring for someone with Down’s syndrome, as well as supporting adults on all aspects of living in their community. We work with partners in Scottish Government and other organisations to ensure the voices of people with Down’s syndrome are heard and opportunities are increased in transitions from school, employment and independent living.

In response to the COVID 19 pandemic and associated social distancing measures we are now providing vital remote support to people with Ds, their families, carers and professionals across Scotland.

  • Through our new helpline and secure online community platform our Family Support Team are focused on providing emotional support to parents and carers of children and adults with Ds, addressing the impact of social isolation on people with Ds, improving their wellbeing and helping to build their resilience for the months ahead.
  • Our national communication development programme, providing support to 125 babies, children and young people and their families, has moved online. These regular video sessions are dedicated to providing practical support to parents and activities for children to develop communication skills that can be continued in the home and school environment.
  • We are currently supporting our nine Branches across Scotland to connect their communities and re-establish their activities online. This will reduce social isolation and provide a great way for families and people with Ds to access peer support and share experiences and local knowledge during this difficult time.

Support us In these very challenging times please help us to continue to provide vital support and reach more people with Down's syndrome across Scotland.

Donate now
Q Our Office in Edinburgh

Riverside House,
502 Gorgie Road
EH11 3AF

Q Our Family Support Team

Our Family Support team are based regionally across Scotland and work remotely. They are available from 8am to 8pm Monday to Friday by email, phone and live chat through our members only community platform.
Call: 0300 030 2121
Email: familysupportservice@dsscotland.org.uk

Q Our Local Support Branches

We have nine branches located throughout Scotland. Our local support branches are a great way for families within a local area to connect with one another, gain peer support, and share experiences and local knowledge. Our branches are:
Aberdeen - City & Shire
Dumfries & Galloway
Edinburgh & the Lothians
Highlands & Islands
Tayside & Fife
West of Scotland
For more information and contact details for each branch visit our website.